#627: Patient-Directed Data Sharing: Enabling Innovations While Including Patients in Decisions about Secondary Data Use
Wednesday, June 17, 2026 1:45 PM to 2:45 PM · 1 hr. (America/New_York)
111AB
02: ClinicalTrialOps-Innovation03: Data-Tech-AI
Information
We’ll review the history, laws, and policies of the current data sharing environment. We’ll discuss ethical considerations for why the typical approach to consent and deidentification of data hinder trust and innovation. We’ll give a case study of pa
CE
ACPECMERN
Session Level
Advanced
Featured Topics
Ethics, Trust and Responsible Innovation
Learning Objectives
Describe the history of data sharing and the laws and policies that have informed it; Discuss the ethical considerations for shifting our mindset about data access permissions; Apply a patient-directed mindset to data access to unlock innovation and improve data utility
